He may be small, but he IS mighty........

Holden is still quite the little guy. He's almost eight years old and is lucky if he's forty-six pounds. That's in the 5th percentile for his age, for those that keep track of those things! But this kid is super tough! As most know, Holden started wrestling in March of 2009, so almost a year ago. He's done very well in that time and has amassed quite a collection of medals! He's gotten four, 2nd place medals (silver), and one, 3rd place medal (bronze). He also got the coach's "Most Improved Wrestler" medal last spring as well as the gold medal and ribbon the coach gave out to all the kids who wrestled during the season.

While he didn't place in his most recent tournament (January 16th), he did very well. We didn't really like the way they had the brackets set up, but it seems that Holden overcame his anxiety he seems to get when there's a tournament. He even PINNED the first kid he had to wrestle. YAY Holden!!! :) He lost his next two matches, but he kept himself together pretty well and enjoyed spending his time with his teammates and cheering them on.

Among other news... Holden FINALLY has a REAL big boy bed! He's been begging for one for quite a long time now, and we jumped at the chance when hubby's aunt and uncle offered us up their son's bed frame and boxspring. We figured if nothing else, it gives Holden a place to sleep and he can get out of the toddler bed (which was really, a crib with the front taken off). He absolutely LOVES his new bed and loves the new sheets I picked out for him.

 

In other, more educational/school news.... Holden's report card, was ALSO fantastic! All Ss (Satisfactory) except two Ps (making progress) and ONE O (outstanding!). Now the funny thing about the subject/area he got the O in.... it was in...... currency and money value! Anyone who knows Holden, KNOWS he knows his money facts and can count money like nobody's business. You can give him two numbers and he can't add them, but if you add a dollar sign to the front of the number, you can bet he can add it then! LOL He's such a smart boy, and we're very proud. He was happy to have earned $35 for his report card. We also did some educational/psychological testing to see if he had any other issues other than the ADHD diagnosis we got from the pediatrician back in December of 2008. The psychologist did confirm the ADHD diagnosis and tacked on a diagnosis of Generalized Anxiety Disorder. Now, the anxiety is not something that needs to be treated with medication (at least, not yet....) but it is something that we need to be aware of when we're being overly critical of him, his behavior, etc. The testing also showed an above average IQ (we already KNEW he was smart). His reading scores were quite high, while most of his other scores were above grade level, but not substantially so. His writing scores however, are right at his grade level (2nd grade), which is not altogether bad, but it does show a discrepency considering his IQ and other scores. It's something we're working on and hoping it improves with time.

Well, it's time to figure out what is for dinner ...... I'm thinking leftover chili, but we'll see what the hubby says. If not, maybe some hamburger helper or something.

Toodles everyone!

Three steps forward, two steps back..... ??

 Well, that's what it felt like at the time ..... let me explain....

Ashton's behavior started spiraling out of control in November and culminated with us having to put him back on an anti-psychotic medication to somewhat control his mood swings, odd behaviors and aggressiveness. Unfortunately, what caused the initial downward spiral was ANOTHER medication that we had started in November to help with some OCD tendencies.

There were some massive all-out tantrums (from a kid who is nearly as big as I am, that's not so fun) in some very public places. He was also basically attacking me at every turn for the smallest things. Aside from the chunks of hair he pulled out of my head, and the bruises he and I both incurred from his "fighting with mommy", things seem to be evening out, behaviorally for him.

What culminated all of this into us weaning him from the problematic medication that I thought was causing the initial issue, was Ashton decided it was a great idea to try and jump out of the car while I was driving down the road. He had been trying to escape the house at that point and one day, I was going to my husband's grandparents house to finish up some laundry and Ashton climbed into the front seat (while I was driving) and then on a side street in a neighborhood, climbed over top of me and tried to climb out the window. At this point, I stopped the car and scrambled to figure out what I should do. In any case, the situation got resolved, we made it back home safely and all was well. This lead me to calling our DAN doctor and he made an "emergency" appointment for us with a psychiatrist at our local children's hospital. That appointment isn't for another week, and it was made back at the beginning of January!

Desperate to help Ashton, we started weaning him off of it and I found out about three weeks into the weaning process that Ashton had been hiding the pills under our napkin holder. Since then (it's been about one and a half weeks now) his behavior has gotten a LOT better and his mood is much improved. I'm glad he seems to be getting back to his normal, happy self.

He's happier, he's more social, he's completely his school work in a much better fashion and as evidenced by all of this, his report card was AWESOME! He had all Ss (satisfactory) in behavior areas and his academic grades stayed at Cs (pretty normal for an ASD kiddo with an IEP and modified curriculum) except one, which he *raised* to a B! Even better ......... he is FINALLY, after being in the educational system since he was two and a half years old, reading **ON GRADE LEVEL**! YAY!!

Anyways, here's a recent pic of the booger. He has a really big adversion to brightness (outside mostly) so he's squinting. Still a cute picture though ...... :)

The only other "bad" thing that has been happening is his sleeping is really out of whack and he's got some really erratic sleep patterns. He'll sleep completely through the night from 8pmish to around 6amish for a few nights in a row. Then, he'll mix it up with waking up at 2, 3, or 4am and staying awake the rest of the night, yikes! *sighs* The biggest worry with this a few weeks ago was that he was trying to escape from the house in the middle of the night, but now it's more of the fact that he just doesn't want to go back to sleep.

The GOOD thing that's happening is .... he's realizing that if he ASKS to go outside and tells me why he wants to go outside, that I'm more likely to let him go. Last night, he asked to go outside to "play in the backyard" and I told him to get his shoes, coat, hat & gloves on (it is.. afterall maxing out in the 30s this week). He did and he and his brother played outside for forty-five minutes, came inside to eat dinner and then they went back outside for another thirty minutes until it was too dark outside to play anymore. I wanted to take pictures but I felt like I would spoil their moment and fun so I'll try to get pictures the next time.

Well, I guess I should do another post on Holden (who is doing really well) so that he gets his own glory :) Keep Ashton in your thoughts as we hope that we're past the regressive phase that he was in and that things can continue to improve and his behavior gets more under control.

Enjoy the day!

One year of being GFCF!!!

Ashton - 1oyrs (July 2009)

Well, we've done it. We've made it to a year since having gone GFCF (gluten free, casein free)! We started the diet in late August of last year and WOW, what a year it has been! We've removed him from his 2 behavioral meds (Focalin XR/Adderall XR and Risperdal). For some reason, both medications all of a sudden stopped working; and in fact, were putting Ashton to SLEEP within 20-30minutes of taking them. Odd, but I guess it was his body's way of letting us know that he was done with those medications. We've also taken him off of melatonin as it was no longer doing any good, but we've got him on Clonidine and Imipramine to help him sleep at night. It's still not perfect but at least with this combination of meds, he's not waking up half a dozen times to pee! Oh, speaking of peeing ... HE IS POTTYTRAINED! And not just day-time trained for pee, but day AND nighttime for pee AND poop! WOO freaking HOO!!!! We started him on the regular Monavie in May of this year and within two weeks, he was totally pottytrained with NOTHING having changed on our parts. It was like a lightbulb went off in his head and he was trained. He does the whole deal on his own. He goes without us having to tell him, he wipes himself and the WHOLE BIT! Now if we could get him to stop stripping everytime he uses the bathroom (this IS getting better, slowly!) we'd be doing great! He only does this in people's homes, nowhere out in public, thank goodness! But at 10years of age, it's SO GOOD to not have to drag a backpack and wipes/pull-ups with us EVERYWHERE we go. I still keep an extra change of clothes in the car (for both boys, actually) but that's more of a habit now and we don't ever carry it in with us anywhere. We were JUST about a month ago able to take him off of Risperdal. While he hasn't gained any weight in the last year on it (and also subsequently, his dosage hasn't changed either), I wasn't fond of him being on this. So, coupled with the fact that it seemed like he no longer needed it along with the hesitation of being on such a powerful atypical anti-psychotic drug, I stopped giving it to him with 100% success! WOOHOO! YAY! We removed the FocalinXR/Adderall XR (we switched from one to the other but they both basically do the same thing) in December when we noticed that he was always sleepy after taking it. Weird, but whatever works and he's been off it successfully ever since. Yes, he still takes 2 prescription meds for sleeping, but he's NEVER been a good sleeper, EVER. He goes through good phases, but they typically die off and go right back to constant waking-up all night long. At least now he goes to sleep between 9-9:30pm and I don't hear him awake until 6:00am or so. He might still wake once a night but he doesn't come in MY room anymore (that's a plus!) and he doesn't go in the room over the garage. It's getting better, slowly. Ashton still takes a calcium/vit D supplement since he is dairy-free. He also takes a high dose probiotic to keep the yeast monster away. He also takes cod liver oil and super nu-thera. Nothing has really changed as far as supplements go, other than the Monavie. I'd like to switch him to the Monavie Active, but we're trying to get through our supply of the regular Monavie first. It'll be interesting to see if we notice any big changes with the Monavie Active, but we'll see.

And, for the first summer since he was 4years old, we didn't send him to summer school! We made a HUGE gamble on this, but in the end, it turned out it was the SINGLE BEST THING for Ashton. Last year's experience was such a DISMAL experience that I was unwilling to have him regress AT ALL considering all the gains he's made in the last year. Instead, we signed him up for 3 weeks of Camp Gonnawannagoagin, alternating every other week. HE DID GREAT!!! He did so many FUN things (aquarium, zoo, ocean breeze, bowling, air boat rides, bounce houses, and lots of other fun things) and was quite social with his peer buddies from what I was told. I think the next time we send him, I'm going to ask that he be paired up with an older teen male, to see if that makes a difference in his level of participation in the more active activities. He LOVES the attention he gets from girls, but I DO think that a male could encourage him to be more active, whereas the girls are more likely to "baby" and fawn all over him and let him be a bit sluggish. Either way is good, but I'd LIKE for him to start showing interest in more active things not just sitting and reading a book (which is all well and good, but ya know what I mean). School starts in just over 3weeks and other than the fact we have NO IDEA who the teacher is going to be, I foresee another great year for him. He's had a lot of personal and social growth and cognitive growth so we'll see. We're also gearing back up to start OT and ST, neither of which he's had since the spring (we stopped OT back in March and stopped ST in June). He also hasn't had ANY services ALL summer, which is mind boggling because usually you make sure you have services during the summer to PREVENT regression. But, he hasn't had ANY! YAY!! So all this to say that a year into GFCF, and we're still going strong. Still plodding forwards without too many backward steps. We've been lucky and blessed to have such an easy-going kid to begin with. Further blessed by the support network we have (family, friends, therapists, school personnel) and further by our two boys. Have a wonderful rest of the summer and start of the school year!!!